When I e-mailed my oncologist to tell him that my hcg level was the same, he wrote back:
"Tasha, call the lab. Tell them that the test is a 'quantitative tumor
titer' because of the diagnosis of 'Trophoblastic Disease' and find
out what their 'normal range' is for this situation."
This confused my doctor's office, and they eventually told me that it looked like we had been doing the wrong hcg test. Of course, I was worried about how this would change my result. I should get the result from the new test on Monday.
It looks like it wasn't so much the wrong test, as Dr. Jolles wants to do a specific test that will show what the hcg from the tumor is, if there is any.
Here is his explanation:
"Tumors produce different types of beta-hCG that may be detected. We are
just verifying that we know the date that your level normalizes because
we use it to determine safe followup in the year to come. I am
thinking that it is possible that levels less than 3.2 are considered normal
in their lab. The tumor titer normally reads anything less than 1 as normal.
Let me know what it shows."
So, on Monday we'll see how much hcg is actually in my blood from the cancer. I feel that I have been healed from cancer. I'm just waiting for the blood test to show that.
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